Resources

Treatment Provider Directories

Consult these directories to locate lymphedema therapists and other treatment providers:

• Lipedema Foundation

  • Provider directory: https://www.lipedema.org/provider-directory

• Lymphatic Education and Research Network:

  • Centers of Excellence: https://lymphaticnetwork.org/centers-of-excellence

  • Find a therapist: https://lymphaticnetwork.org/living-with-lymphedema/find-a-lymphedema-therapist/

• Lymphology Association of North America (LANA):

  • Find a LANA specialist: https://clt-lana.org/therapists

• National Lymphedema Network:

  • Lymphatic specialist directory: http://www.lymphnet.org/find-treatment

Note: if you are unable to locate a doctor who treats lipedema or lymphedema in your area, try locating a lymphedema therapist and asking them which doctors they cooperate with.

Websites and organizations:

• American Lipedema Association https://americanlipedemaassociation.org/  

• American Lymphedema Framework Project www.alfp.org

• Canadian Lymphedema Framework www.canadalymph.ca

• Fat Disorders Resource Society www.fatdisorders.org.

• International Lipoedema Association (ILA) www.theila.net

• International Lymphoedema Framework www.lympho.org

• Journal of Lymphoedema (Wounds International) www.woundsinternational.com/journals/latest-issue/journal-of-lymphoedema

• Lipedema Foundation www.lipedema.org

  • Lipedema Library/Bibliography

• Lipoedema Australia www.lipoedemaaustralia.com.au

• Lipoedema UK www.lipoedema.co.uk

  • Best Practice Guidelines for the Management of Lipoedema: https://www.lipoedema.co.uk/wp-content/uploads/2017/05/WUK_Lipoedema-BPS_Web.pdf

  • Distinguishing Lipedema, Lymphedema and Obesity guide for clinicians: https://www.lipoedema.co.uk/wp-content/uploads/2022/01/LUK-Booklet-A5-WebV3.pdf

• Lipedema World Alliance https://lipedemaworldalliance.com/

• Lymph Notes www.LymphNotes.com. Online resource directory, practical information, and books.

• Lymphatic Education & Research Network www.lymphaticnetwork.org

• Lymphedema Advocacy Group/Lymphedema Treatment Act.org lymphedematreatmentact.org

• Lymphology Association of North America (LANA) https://clt-lana.org

• National Lymphedema Network (NLN) www.lymphnet.org.

Books:

Living Well With Lymphedema by Ann Ehrlich, Alma Vinjé-Harrewijn, PT, CLT-LANA & Elizabeth McMahon, PhD (Lymph Notes, 2005). Lymphedema patient’s handbook.

Lymphedema Caregiver’s Guide by Mary Kathleen Kearse, PT, CLT-LANA, Elizabeth McMahon, PhD, & Ann Ehrlich (Lymph Notes, 2009). How to provide or arrange home-care.

Overcoming the Emotional Challenges of Lymphedema by Elizabeth McMahon, PhD (Lymph Notes, 2005).

Voices of Lymphedema edited by Ann Ehrlich & Elizabeth McMahon, PhD (Lymph Notes, 2007). Inspirational teaching stories by people with lymphedema or lipedema and therapists.

100 Questions & Answers About Lymphedema by Saskia R.J. Thiadens, Paula J. Stewart, Nicole L. Stout (Jones & Bartlett Publishers, 2009).

Portions adapted from Lymphedema and Lipedema Nutrition Guide, Lymph Notes 2016 by permission of the publisher.