Resources

Treatment Provider Directories

Consult these directories to locate lymphedema therapists and other treatment providers:

• Lipedema Foundation

  • Provider directory: https://www.lipedema.org/provider-directory

• Lymphatic Education and Research Network:

  • Centers of Excellence: https://lymphaticnetwork.org/centers-of-excellence

  • Find a therapist: https://lymphaticnetwork.org/living-with-lymphedema/find-a-lymphedema-therapist/

• Lymphology Association of North America (LANA):

  • Find a LANA specialist: https://clt-lana.org/therapists

• National Lymphedema Network:

  • Lymphatic specialist directory: http://www.lymphnet.org/find-treatment

Note: if you are unable to locate a doctor who treats lipedema or lymphedema in your area, try locating a lymphedema therapist and asking them which doctors they cooperate with.

Websites and organizations:

• American Lipedema Association https://americanlipedemaassociation.org/  

• American Lymphedema Framework Project www.alfp.org

• Canadian Lymphedema Framework www.canadalymph.ca

• Fat Disorders Resource Society www.fatdisorders.org.

• International Lipoedema Association (ILA) www.theila.net

• International Lymphoedema Framework www.lympho.org

• Journal of Lymphoedema (Wounds International) www.woundsinternational.com/journals/latest-issue/journal-of-lymphoedema

• Lipedema Foundation www.lipedema.org

  • Lipedema Library/Bibliography

• Lipoedema Australia www.lipoedemaaustralia.com.au

• Lipoedema UK www.lipoedema.co.uk

  • Best Practice Guidelines for the Management of Lipoedema: https://www.lipoedema.co.uk/wp-content/uploads/2017/05/WUK_Lipoedema-BPS_Web.pdf

  • Distinguishing Lipedema, Lymphedema and Obesity guide for clinicians: https://www.lipoedema.co.uk/wp-content/uploads/2022/01/LUK-Booklet-A5-WebV3.pdf

• Lipedema World Alliance https://lipedemaworldalliance.com/

• Lymph Notes www.LymphNotes.com. Online resource directory, practical information, and books.

• Lymphatic Education & Research Network www.lymphaticnetwork.org

• Lymphedema Advocacy Group/Lymphedema Treatment Act.org lymphedematreatmentact.org

• Lymphology Association of North America (LANA) https://clt-lana.org

• National Lymphedema Network (NLN) www.lymphnet.org.

Books:

Living Well With Lymphedema by Ann Ehrlich, Alma Vinjé-Harrewijn, PT, CLT-LANA & Elizabeth McMahon, PhD (Lymph Notes, 2005). Lymphedema patient’s handbook.

Lymphedema Caregiver’s Guide by Mary Kathleen Kearse, PT, CLT-LANA, Elizabeth McMahon, PhD, & Ann Ehrlich (Lymph Notes, 2009). How to provide or arrange home-care.

Overcoming the Emotional Challenges of Lymphedema by Elizabeth McMahon, PhD (Lymph Notes, 2005).

Voices of Lymphedema edited by Ann Ehrlich & Elizabeth McMahon, PhD (Lymph Notes, 2007). Inspirational teaching stories by people with lymphedema or lipedema and therapists.

Lymphedema and Lipedema Nutrition Guide by Chuck Ehrlich, Emily Iker, MD, Karen Louise Herbst, PhD, MD, Linda-Anne Kahn, CMT, CLT-LANA, Dorothy D. Sears, PhD, Mandy Kenyon, MS, RD, CSSD, and Elizabeth McMahon, PhD. (Lymph Notes 2016).

100 Questions & Answers About Lymphedema by Saskia R.J. Thiadens, Paula J. Stewart, Nicole L. Stout (Jones & Bartlett Publishers, 2009).

Portions adapted from Lymphedema and Lipedema Nutrition Guide, Lymph Notes 2016 by permission of the publisher.